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LETTERS FROM WAKE ROBIN FARM

Benzobuddies Revisited

This comment showed up on  a blog post I wrote a year ago, so I thought I'd move it to the top where people would have a better chance of finding it. Everything the commenter writes here rings true to me regarding the webside, Benzobuddies.org.

 

 

June 06, 2019 8:27 AM EDT

I experienced the same thing on BenzoBuddies. At first it was a great forum and others on that forum helped me through the toughest times of my withdrawal. After I healed, I thought I would pay it forward. I was doing a good job helping others and then decided to introduce outside sources of hope and encouragement. I was instantly reprimanded and when I complained, they pretty much locked down my account to where I couldn't post anything without moderator approval, nor could I Personal Message anyone. My account was for all intents and purposes...worthless and not usable. I told one moderator in particular that you need people on the site that healed to help and give hope to others. She dismissed it and said I thought I was "special" and "better than everyone else." Because I volunteered my time on the site? Needless to say I don't go on BBs any longer. Their draconian rules are only meant to stifle what they claim they are about, which is giving others hope. Too many rules, too many moderators on a power kick and too political...that's how I would sum up BenzoBuddies. Plus too many hard core people that claim they never heal when they don't tell "rest of the story." Almost all of those cases involve being poly drugged and having preexisting medical conditions prior to any type of anti-psychotic drug use.

- Igotmylifeback

 

 

Like this poster, while I was initially relieved to find the Benzobuddies site and learn that I was not along in the hell I was going through in withdrawal from Xanax, the place quickly became a negative in my life.  The nastiness shown to me by certain members and moderators was hardly conducive to healing when what is so sorely needed is kindness.

 

I right away broke the unspoken Benzobuddies rule that says it's okay to go on at length about the amazing book you're going to publish just as soon as you get well, but you mustn't actually DO it.  Apparently it's hard on the feelings of people who want to tell themselves they're going to write book.  They're enjoying collecting  posts of encouragement and admiration from others for the writing skills they're already displaying.  Actually writing a book makes them face the fact that they are NOT writing a book.

 

I had hoped the story of my eventual recovery would be helpful to others. It certainly wasn't helpful to me.  Okay, it's true, it WAS therapeutic to feel I would have my say and tell what it felt like to sit in each of these doctor's offices, but in writing out and going over and over in editing the most painful scenes of my ordeal, I really set myself up for PTSD. People who just forget may do better. But, I'm a writer; that's what I do.

 

Once my book was published, BB moderators scolded me if I mentioned it on the site.  Occasionally the moderator, Colin Moran, would talk about setting up a thread where books by members or former members could be listed.  Funny thing, that list finally went operative about two days after closed my account. I am not exaggerating.  I assumed my book would be on that list, but a fellow BB whom I'd befriended off the board told me no, it wasn't there.  When she suggested Accidental Addict be listed she was told they couldn't because I hadn't personally requested it.  Ha! How's that for a Catch-22? Because now that I was off the board, I had no way of contacting them anyway.

 

Well, nuts to them. In the end, I doubt people on the BB board are the absolute best audience for my book anyway.  So far, it's probably had more impact on people who start reading it just to check out a trainwreck story of somebody else's problems, only to find that drugs that gave me grief (Oxycodone and Xanax) are the very ones they themselves are currently taking.   

 

So, heads up! If you're taking Xanax occasionally to sleep, you may be compromising your brain.  You won't know how much until you try to go off.  Please, educate and save yourselves.

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Loving My Life Again

My friend Marsha Ham and I go way back. We met around the time our first babies were born, so that means we’re talking 35 years at this point! We always take each other out on our birthdays and share the latest stories of marriage, motherhood and now, grandmotherhood.

In the summer of 2013, I asked if we could postpone her August birthday lunch for a month. I was in over my head with trying to ready a little bungalow to put on the market, and looked forward to the massive relief I expected when the stress of this was behind me. I thought we could drive the hour up to take a look at the farm property her daughter had just bought and then have lunch in Silverton.

I’m glad I didn’t know at the time it was going to take me three-and-a-half years to make good on this suggestion! That summer, I had no idea how sick I really was or how long it would take before I fully recovered from the effects of prescribed Oxycodone and Xanax.

Now that I'm well and busy reclaiming my life, I don’t often visit my old message board for people trying to get off of benzodiazepines, but the other day somebody wrote asking about anhedonia and wanting stories of people who’d recovered from this. While I never felt inclined to write blog posts about being sick, I now find I do want to write about the joys of being well. I want to help spread the message to anyone on this same path that yes, recovery is possible.

Anhedonia, for those unfamiliar with the term, is defined as a condition characterized by an inability to experience pleasure in acts which normally produce it. And we’re not just talking about sex or other peak experiences here! It’s everything. Most of us don’t even realize the simple, moment to moment pleasures involved in daily life—the first cup of coffee in the morning, for example—until they're completely stripped away.

I didn’t realized how thoroughly compromised my brain was that summer. I thought I was just over-worked, sick of life, and mad at everybody. Ditching my entire family and running away sounded like an excellent idea. In my darkest hours of bleak despair, I was, frankly, suicidal.

Nothing to do but hang on and live through it, which is the story I describe in Accidental Addict. Eventually I started having what people call “windows,” where I’d notice myself having positive thoughts again, and now, finally, I’m back to my old self. But it took a ridiculously long time.

That’s why my outing to Silverton with my friend yesterday seemed so momentous. I savored my awareness that my thoroughly healed brain was capable of delighting in every little thing: the blessed sunshine after this long rainy Northwest winter, the pleasure of reconnecting, of being out in the world again. I loved seeing Marsha’s pistol of a daughter in her element, and we both marveled at her energy, remembering our days as young back-to-the-land moms when we were ourselves trying to rehab ramshackle houses and grow gardens, all with kids underfoot.

So yes, it’s possible to heal from this horrific symptom, and for people who come out of anhedonia, it’s almost like a religious experience. We have a renewed appreciation for the essential sweetness of life itself.

Anhedonia is a concept I feel is missing from so many discussions of recovery from drug addiction. Nobody talks about just how long it takes for a brain to recover. Addicts manage to ditch their street drugs and go through withdrawal, only to find themselves thinking that life “clean” isn’t what it’s cracked up to be. But that’s because they’re not really well. It’s too soon to judge. It might take a couple of years after being technically “clean” before a person begins to experience the everyday joys of life again. I used to be as judgmental as the next person, feeling all these reported relapses were just instances of bad decision-making. Now I understand the despair, and I wish addicts could get less judgment and more emotional support in trying to stay clean long enough to let time do its healing.

If this is you, if you’re suffering from anhedonia after withdrawing from drugs—street or prescription, it makes no difference to your brain—hang in there. It often takes longer than people expect, but you will heal in the end. My Rx is simple—no going back on your drugs, no layering on of new drugs to “help.” Just give it time. Eat right, rest, exercise, try not to tear it with the people who care about you, and keep hanging on to the belief that if you stick to this path, one day for sure you’ll again be walking back out into the light.  Read More 
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ACCIDENTAL ADDICT is available on Amazon

Please click here to view a two-and-a-half minute YouTube trailer for ACCIDENTAL ADDICT.
ADVANCED PRAISE FOR ACCIDENTAL ADDICT:

After telling in lucid prose how she become an Accidental Addict, Linda Crew provides a prescription that all of medicine should heed: “A doctor should never prescribe a drug without an understanding of what it takes to get off of that drug, and a willingness to help his patient accomplish this.” One hopes that everyone who prescribes benzodiazepines and opioid painkillers will read this compelling memoir.
Robert Whitaker, Anatomy of an Epidemic

Crew’s inspiring triumph over addiction and withdrawal is a lifeline for anyone struggling to recover from prescription painkillers or anti-anxiety medications…. a brutal eye-opener for bystander friends, family, and doctors at a loss for clarity and compassion who, inadvertently, reopen the dark, black hole of desperation. This bold memoir is a riveting roller coaster of devastating defeat, tenacious courage, and exhilarating joy, gratitude, and hope.
Gretchen Olson, Call Me Hope

I hope this timely book gets widely read. Linda Crew’s experience has been shared by millions of Americans and many have lost their lives. The medical community has accidentally created an epidemic of addiction by overprescribing narcotics, and now everyone, including prescribers, needs to know how easily these drugs can destroy lives.
Andrew Kolodny, MD—Executive Director, Physicians for Responsible Opioid Prescribing

Accidental Addict is an excruciatingly tender, necessary work, wonderfully written, so compelling, so honest. Incredibly personal and filled with love. The many, many people who don't even know this is happening to them will thank Linda Crew over and over.
Jane Kirkpatrick, Homestead

I found myself instantly drawn into her story, and her witty delivery kept me engaged. Definitely a wake-up call for all of us about the perils of painkiller and anti-anxiety medication use, and the way doctors have carelessly over-prescribed these drugs in the last few decades. A fascinating (and scary) read that won’t be easy to forget.
Margot Vance-Borland, LPC

Linda Crew clearly has a gift. Her memoir about the unrecognized epidemic of protracted withdrawal illnesses caused by benzodiazepines and other psychiatric drugs is written like a novel and, like a brilliant piece of fiction, gets under your skin…an important piece of literature that may help educate many.
Monica Cassani, author and editor of Beyond Meds, prize-winning web magazine

Linda Crew's Accidental Addict is a must read for all medical students across America, and physicians who treat pain will find this book very useful as they rethink the way they are prescribing narcotics....a superb book on an enormous medical issue of our time.
Mark Rampton, M.D., Family Physician at Corvallis Family Medicine

Addiction to prescribed medications, due to the actions of well-meaning medical professionals, has become alarmingly common across the country today. Linda Crew has written a compelling and bravely honest memoir of her struggle and recovery from the aftereffects of legally prescribed narcotic painkillers and benzodiazepines. Her voice is clear on their devastating impact, and her story is one that needs to be widely read and shared by both patients and providers.
Catherine Saeger, LICSW

If you believe that smart, strong, successful people who faithfully follow the rules, listen to their doctors, and have a solid and impressive support system of family and friends are not the “sorts of folks” who become addicted to prescription narcotics for post-surgical pain, then you’d best read Linda Crew’s Accidental Addict, a memoir that’s as harrowing, honest, and raw as it is timely. Crew writes with a ferocious energy, as though she’s determined to finish the book even as the walls of her own home are crashing down around her.
Rick Borsten, The Great Equalizer

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